Full Circle - edition by Pauline Pearce. Health, Fitness & Dieting eBooks @ .
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"Full Circle is the remarkable autobiography of Pauline's life with the neurological movement disorder known as dystonia. Rarely can one read such an honest, appealing and well-written account of a life turned upside-down by dystonia. Courage and honesty are hugely over-used words nowadays but they apply in abundance to Pauline's story, which I found genuinely gripping" - Philip Eckstein, Chief Executive of The Dystonia Society
Description
This is my story written from the heart. It might, initially anyway, be an uncomfortable read but this is my unabridged story - the truth of my life as it was as an adolescent and into early adulthood.
Some might say, perhaps, it would have been better unwritten - that, in many ways, I am exposing something too personal that should remain within me rather than in written, exposing words. Yet I feel no shame in the text I have penned. Pauline Pearce
Book Extract
Why do I feel so sad? I have so much to be thankful for - a good husband; a beautiful, yet temperamental, teenage daughter; a "nice" home, in a "nice" rural Cheshire village and (plus I do stress this) I am sitting in the hot sunshine on a veranda overlooking the Amalfi coastline, one of the most scenic views in, not only Italy but in the entire world. Then - why sad? Why are tears just a nano-second away? Why if I could just doze off in the heat, in the beauty of the surrounding never to re-awaken, why might that feel so good? I'm tired - not tired of life in general - that has potential, new experience, new adventure ahead.
No, I'm tired of my life and the constant fight I feel everyday is becoming. I'm 45, yet sometimes I feel double this, as I strive not wanting to give in to the illness and pain, both physical & psychologically, that constantly exhausts me. Now would be a good time for an ending - in the warm sunshine, in these beautiful surroundings before life becomes more burdensome and my capabilities become more limited. Before my life shrinks any more. I've never quite understood why so often, on war memorials, mention is made to the sadness of young men cut off in their prime, yet - as a positive - their bodies never ageing.
They'll be remembered at the age they met their maker - for the beauty of their youth; for the life potential they had, yet didn't fulfil; for the perfection of their fit, young bodies. I'm scared of death (even though a Christian) - the uncertainties, the finality but, perhaps more, the mode and shape of its advent. I've seen too many friends, near my own age, die recently. I've watched their gradual deterioration, their loss of dignity as illness stripped them of mobility and independence - bed pans, bed baths, loss of control of bowels and bladder; returning both in body and mind to infancy.
Full Circle - edition by Pauline Pearce. Health, Fitness & Dieting eBooks @ .
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Full Circle - edition by Pauline Pearce. Health, Fitness & Dieting eBooks @ . Reviews
I had never heard of dystonia and this book opened my eyes. That this woman can manage her great pain, her responsibilities and her children is a testament to her. Anyone looking for a personal account of this illness or any other largely misunderstood and publicaly neglected condition should read this. You will find encouragement and support.
As someone who has close relative with a similar disorder, I thought the book very moving and the result of the author's struggle and willful decisions to face with honesty.
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